國立虎尾科技大學 |

Exploring Conceptualizations of Work Distribution Across Dementia Care Networks.

Record Type:	Language materials, manuscript : Monograph/item
Title/Author:	Exploring Conceptualizations of Work Distribution Across Dementia Care Networks./
Author:	Linden, Anna.
Description:	1 online resource (151 pages)
Notes:	Source: Dissertations Abstracts International, Volume: 85-11, Section: B.
Contained By:	Dissertations Abstracts International85-11B.
Subject:	Industrial engineering. -
Online resource:	click for full text (PQDT)
ISBN:	9798382580661

Exploring Conceptualizations of Work Distribution Across Dementia Care Networks.
Linden, Anna.

Exploring Conceptualizations of Work Distribution Across Dementia Care Networks. - 1 online resource (151 pages)

Source: Dissertations Abstracts International, Volume: 85-11, Section: B.

Thesis (Ph.D.)--The University of Wisconsin - Madison, 2024.

Includes bibliographical references

Society relies on informal caregivers (such as family and friends) to provide a majority of the long-term care for the nearly 6 million people living with Alzheimer's disease and related dementias (ADRD) in the US. The role of caregiver carries a complex set of responsibilities, from providing daily functional and clinical care to managing the social and emotional dynamics of close relationships. Caregivers report a lack of support for their work and subsequently, a broad range of negative outcomes, including heightened risk for depression, chronic diseases, and burnout. In order to design tools and systems that fully support the work of informal caregivers, we need to understand their unique contexts and needs, including the structure and characteristics of the care network: the formal, informal and community resources that caregivers collaborate with to provide care. This dissertation explores caregivers' conceptualizations of work distribution across their care network and develops design tools which can be used to support future interventions. A total of 43 semi-structured interview transcripts with caregivers were analyzed using an inductive/deductive content analysis to capture factors which influenced caregivers' experience distributing work across different types of support. Epistemic Network Analysis (ENA) graphs and statistical analyses determined that caregiver appraisal of work distribution differed significantly by type of support (formal healthcare, informal support and community resources) in the network. We also found that caregiver role, whether adult child or spouse to the care recipient, determined differences in appraisal and approach to work distribution. These results were used to generate five caregiver personas which represent distinct approaches to work distribution across a network and can be used to assist designers and researchers in creating interventions to support a broad range of caregiver needs. These findings integrate perspectives from the fields of patient ergonomics, gerontology, and computer-supported cooperative work to offer unique insight into the collaborative work of informal dementia caregivers, and lay the foundation for future work which considers the needs of the care network as a whole.

Electronic reproduction.
Ann Arbor, Mich. :
ProQuest,
2024

Mode of access: World Wide Web

ISBN: 9798382580661Subjects--Topical Terms:

679492
Industrial engineering.
Subjects--Index Terms:

CaregivingIndex Terms--Genre/Form:

554714
Electronic books.

Exploring Conceptualizations of Work Distribution Across Dementia Care Networks.
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