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Communicating rare diseases and disorders in the digital age

Record Type:	Language materials, printed : Monograph/item
Title/Author:	Communicating rare diseases and disorders in the digital age/ edited by. Liliana Vale Costa and Sónia Oliveira.
other author:	Costa, Liliana Vale.
Published:	Hershey, Pennsylvania :IGI Global, : 2020.,
Description:	1 online resource (xxiii, 412 p.)
Notes:	"Premier Reference Source" -- Cover.
Subject:	Rare diseases - Information resources. -
Online resource:	http://services.igi-global.com/resolvedoi/resolve.aspx?doi=10.4018/978-1-7998-2088-8
ISBN:	9781799820895 (ebk.)

Communicating rare diseases and disorders in the digital age
Communicating rare diseases and disorders in the digital age[electronic resource] /edited by. Liliana Vale Costa and Sónia Oliveira. - Hershey, Pennsylvania :IGI Global,2020. - 1 online resource (xxiii, 412 p.) - Advances in medical technologies and clinical practice (AMTCP) book series. - Advances in medical technologies and clinical practice book series..

"Premier Reference Source" -- Cover.

Includes bibliographical references and index.

Chapter 1. Talking about rare diseases: a compendium on rare diseases and online news -- Chapter 2. Health-related communication and rare diseases: a passport for the patient journey -- Chapter 3. Designing sustainable social media health communication campaigns for promoting rare diseases -- Chapter 4. Digital media in rare diseases or "knowledge is power": the role of eurordis in creating awareness and diagnosing rare diseases -- Chapter 5. Public media coverage of rare diseases and disorders: the case of Spanish public broadcasting corporation -- Chapter 6. Representation of patients with rare diseases in Spanish media -- Chapter 7. Networks in rare diseases: identities, partnership, and advocacy in Brazil -- Chapter 8. Challenges of parents with children with rare diseases in Portugal: a relational perspective -- Chapter 9. Neuropsychiatry in late onset tay-sachs disease: key features and possible etiology of psychosis -- Chapter 10. Portraying rare and misdiagnosed diseases in movies: a content analysis, 1980-2018 -- Chapter 11. How is the administrator's experience in managing health facebook groups?: the impact of social media in patients with IBD.

"This book explores the use of computer-mediated communication in rare diseases and disorders"--

ISBN: 9781799820895 (ebk.)Subjects--Topical Terms:

1340751
Rare diseases
--Information resources.

LC Class. No.: RA971.6 / .C66 2020

Dewey Class. No.: 362.10285

Communicating rare diseases and disorders in the digital age
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050 0 0 $a RA971.6 $b .C66 2020
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245 0 0 $a Communicating rare diseases and disorders in the digital age $h [electronic resource] / $c edited by. Liliana Vale Costa and Sónia Oliveira.
260 $a Hershey, Pennsylvania : $b IGI Global, $c 2020.
300 $a 1 online resource (xxiii, 412 p.)
490 1 $a Advances in medical technologies and clinical practice (AMTCP) book series
500 $a "Premier Reference Source" -- Cover.
504 $a Includes bibliographical references and index.
505 0 $a Chapter 1. Talking about rare diseases: a compendium on rare diseases and online news -- Chapter 2. Health-related communication and rare diseases: a passport for the patient journey -- Chapter 3. Designing sustainable social media health communication campaigns for promoting rare diseases -- Chapter 4. Digital media in rare diseases or "knowledge is power": the role of eurordis in creating awareness and diagnosing rare diseases -- Chapter 5. Public media coverage of rare diseases and disorders: the case of Spanish public broadcasting corporation -- Chapter 6. Representation of patients with rare diseases in Spanish media -- Chapter 7. Networks in rare diseases: identities, partnership, and advocacy in Brazil -- Chapter 8. Challenges of parents with children with rare diseases in Portugal: a relational perspective -- Chapter 9. Neuropsychiatry in late onset tay-sachs disease: key features and possible etiology of psychosis -- Chapter 10. Portraying rare and misdiagnosed diseases in movies: a content analysis, 1980-2018 -- Chapter 11. How is the administrator's experience in managing health facebook groups?: the impact of social media in patients with IBD.
520 3 $a "This book explores the use of computer-mediated communication in rare diseases and disorders"-- $c Provided by publisher.
650 0 $a Rare diseases $x Information resources. $3 1340751
650 0 $a Medical informatics. $3 583858
650 0 $a Communication in medicine. $3 635882
650 0 $a Social media in medicine. $3 1002500
700 1 $a Costa, Liliana Vale. $3 1340748
700 1 $a Oliveira, Sónia, $d 1986- $3 1340749
830 0 $a Advances in medical technologies and clinical practice book series. $3 1340750
856 4 0 $u http://services.igi-global.com/resolvedoi/resolve.aspx?doi=10.4018/978-1-7998-2088-8