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Patients' lived experiences during the transplant and cellular therapy journey = harvest and hope /

紀錄類型:	書目-語言資料,印刷品 : Monograph/item
正題名/作者:	Patients' lived experiences during the transplant and cellular therapy journey/ edited by Jean Coffey ... [et al.].
其他題名:	harvest and hope /
其他作者:	Coffey, Jean.
出版者:	Cham :Springer Nature Switzerland : : 2023.,
面頁冊數:	xx, 155 p. :ill. (some col.), digital ; : 24 cm.;
Contained By:	Springer Nature eBook
標題:	Hematology. -
電子資源:	https://doi.org/10.1007/978-3-031-25602-8
ISBN:	9783031256028

Patients' lived experiences during the transplant and cellular therapy journey = harvest and hope /
Patients' lived experiences during the transplant and cellular therapy journeyharvest and hope /[electronic resource] :edited by Jean Coffey ... [et al.]. - Cham :Springer Nature Switzerland :2023. - xx, 155 p. :ill. (some col.), digital ;24 cm.

Foreword -- Introduction -- Creating a Patient-Centered Case Study -- Part A. The Autologous Stem Cell Transplant Journey -- Chapter 1. Hope and Determination -- Chapter 2. The Hugger -- Chapter 3. Spaces in Between -- Part B. The Allogeneic Stem Cell Transplant Journey -- Chapter 4. Saving Superman -- Chapter 5. Brothers in Arms -- Chapter 6. Letting Go -- Chapter 7. Another Ode to August -- Chapter 8. Dr's Orders -- Chapter 9. Am I Dreaming -- Chapter 10. With Every Sunrise I'll Do Better -- Part C. The CAR T-Cell Journey -- Chapter 11. Second Chances -- Epilogue: Saying Goodbye, Lasting Reflections and New Horizon.

The book was envisioned by bedside nurses caring for transplant and cellular therapy patients as a way to teach novice nurses and health care colleagues about the care required for this complex patient population. The nurse authors recruited an oncology nurse practitioner, transplant physician, nurse scientist and expert in medical humanities and health studies to join the project team. The dedication of the team and the willingness of the patients to contribute to the project, has led to a unique case study approach focused on the lived experience of patients and care partner(s) during the transplant/cellular therapy journey. The case studies are unique in that they encompass a qualitative narrative developed using Interpretive Phenomenological Analysis (IPA) and the inclusion of the individual's actual medical and nursing care from their health record. At every step along the trajectory of the illness, the medications and care received are described, interspersed with the voice of the patient and care partner(s) sharing their experiences. The chapters follow the individual patients and their care partner(s) through all phases of their illness. The interviews were conducted, and case studies written by the bedside clinical nurses. Visual art and prose created by patients and care partner(s)s are included in the chapters. The book also includes an introduction written by the nurse authors, a methods chapter on the inclusion of IPA in a case study, and poignant epilogue. The premise of nursing support for survivorship is woven throughout the book, highlighting how giving back aids in recovery identity. This book is the work of clinical nurses devoted to improving care for their patients by sharing the patient stories with others. It introduces a unique approach to the case study which could be replicated and applied to any diagnosis.

ISBN: 9783031256028

Standard No.: 10.1007/978-3-031-25602-8doiSubjects--Topical Terms:

645254
Hematology.

LC Class. No.: RD129.8 / .P38 2023

Dewey Class. No.: 617.9540231

Patients' lived experiences during the transplant and cellular therapy journey = harvest and hope /
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