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The governance of genetic information : = who decides? /

Record Type:	Language materials, printed : Monograph/item
Title/Author:	The governance of genetic information :/ edited by Heather Widdows and Caroline Mullen.
Reminder of title:	who decides? /
other author:	Widdows, Heather,
Description:	1 online resource (xi, 235 pages) :digital, PDF file(s). :
Notes:	Title from publisher's bibliographic system (viewed on 05 Oct 2015).
Subject:	Genetic screening - Moral and ethical aspects. -
Online resource:	https://doi.org/10.1017/CBO9780511635274
ISBN:	9780511635274 (ebook)

The governance of genetic information : = who decides? /
The governance of genetic information :who decides? /edited by Heather Widdows and Caroline Mullen. - 1 online resource (xi, 235 pages) :digital, PDF file(s). - Cambridge law, medicine, and ethics ;9. - Cambridge law, medicine, and ethics ;2..

Title from publisher's bibliographic system (viewed on 05 Oct 2015).

The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Søren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches /Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.

This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.

ISBN: 9780511635274 (ebook)Subjects--Topical Terms:

799468
Genetic screening
--Moral and ethical aspects.

LC Class. No.: RB155.65 / .G68 2009

Dewey Class. No.: 362.196/04207

The governance of genetic information : = who decides? /
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505 0 0 $t The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Søren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / $r Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.
520 $a This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.
650 0 $a Genetic screening $x Moral and ethical aspects. $3 799468
650 0 $a Genetic screening $x Government policy. $3 799467
650 0 $a Privacy, Right of. $3 566424
650 0 $a Medical records $x Access control. $3 799469
700 1 $a Widdows, Heather, $d 1972- $e editor. $3 1442378
700 1 $a Mullen, Caroline, $e editor. $3 1442379
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