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Emerging Supportive Online Spaces for Dementia Caregivers and People Living With Dementia.

Record Type:	Language materials, manuscript : Monograph/item
Title/Author:	Emerging Supportive Online Spaces for Dementia Caregivers and People Living With Dementia./
Author:	Johnson, Jazette M.
Description:	1 online resource (171 pages)
Notes:	Source: Dissertations Abstracts International, Volume: 85-02, Section: B.
Contained By:	Dissertations Abstracts International85-02B.
Subject:	Social research. -
Online resource:	click for full text (PQDT)
ISBN:	9798380130783

Emerging Supportive Online Spaces for Dementia Caregivers and People Living With Dementia.
Johnson, Jazette M.

Emerging Supportive Online Spaces for Dementia Caregivers and People Living With Dementia. - 1 online resource (171 pages)

Source: Dissertations Abstracts International, Volume: 85-02, Section: B.

Thesis (Ph.D.)--University of California, Irvine, 2023.

Includes bibliographical references

People living with dementia as well as dementia caregivers are finding new ways to provide and receive support online. The emerging use of social media platforms-such as TikTok, Clubhouse, and Facebook-by people with dementia and dementia caregivers enables new forms of sharing about stigmatized, poorly understood, and often under-discussed experiences. Building on prior work focused on formal support groups, my dissertation reports findings of three qualitative studies that answer the overall research question of how care-givers use traditional and novel online technologies to give and receive social support, and in turn, how these technologies and practices expand the notion of social support? My analysis reveals that both groups cultivate new online spaces for sharing about the experience of dementia while also navigating tensions surrounding public disclosure of lived experiences, advocacy, education, and the ability to protect and keep private elements of life experiences. I will discuss how these groups cultivate online spaces across platforms and contribute to ongoing ethical debates about consent in online communities.

Electronic reproduction.
Ann Arbor, Mich. :
ProQuest,
2024

Mode of access: World Wide Web

ISBN: 9798380130783Subjects--Topical Terms:

1179269
Social research.
Subjects--Index Terms:

CaregiversIndex Terms--Genre/Form:

554714
Electronic books.

Emerging Supportive Online Spaces for Dementia Caregivers and People Living With Dementia.
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504 $a Includes bibliographical references
520 $a People living with dementia as well as dementia caregivers are finding new ways to provide and receive support online. The emerging use of social media platforms-such as TikTok, Clubhouse, and Facebook-by people with dementia and dementia caregivers enables new forms of sharing about stigmatized, poorly understood, and often under-discussed experiences. Building on prior work focused on formal support groups, my dissertation reports findings of three qualitative studies that answer the overall research question of how care-givers use traditional and novel online technologies to give and receive social support, and in turn, how these technologies and practices expand the notion of social support? My analysis reveals that both groups cultivate new online spaces for sharing about the experience of dementia while also navigating tensions surrounding public disclosure of lived experiences, advocacy, education, and the ability to protect and keep private elements of life experiences. I will discuss how these groups cultivate online spaces across platforms and contribute to ongoing ethical debates about consent in online communities.
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653 $a Social support
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