國立虎尾科技大學 |

Enriching Social Sharing for the Dementia Community : = Technological Opportunities.

Record Type:	Language materials, manuscript : Monograph/item
Title/Author:	Enriching Social Sharing for the Dementia Community :/
Reminder of title:	Technological Opportunities.
Author:	Dai, Jiamin.
Description:	1 online resource (339 pages)
Notes:	Source: Dissertations Abstracts International, Volume: 85-05, Section: B.
Contained By:	Dissertations Abstracts International85-05B.
Subject:	Writing. -
Online resource:	click for full text (PQDT)
ISBN:	9798380705844

Enriching Social Sharing for the Dementia Community : = Technological Opportunities.
Dai, Jiamin.

Enriching Social Sharing for the Dementia Community :Technological Opportunities. - 1 online resource (339 pages)

Source: Dissertations Abstracts International, Volume: 85-05, Section: B.

Thesis (Ph.D.)--McGill University (Canada), 2023.

Includes bibliographical references

Dementia affects cognition, behaviour, and physical ability, posing serious challenges for maintaining active social interactions. Community-based activities are well-positioned to leverage the strengths and capacities of people with dementia and support social inclusion. A growing body of human-computer interaction (HCI) research is exploring technological opportunities for social activities at home and care facilities; however, comparatively less work has focused on community settings. This thesis helps fill this critical gap in HCI research on supporting community-based social sharing for people with dementia, both in-person and virtual. Through on-site fieldwork, virtual fieldwork, and methodological self-reflection, this thesis makes empirical contributions to dementia-related HCI research, as well as methodological contributions to HCI research in dementia and broader accessibility settings.Situating our on-site fieldwork in Tales & Travels, a storytelling and socializing program in the Montreal dementia community, we interviewed dyads of people living with early-middle stage dementia and their primary family caregivers, individual caregivers, and Tales & Travels facilitators (librarians and Alzheimer Society coordinators). Concurrently, we observed Tales & Travels sessions. Through thematic analysis on the interview transcripts and observation notes, this work identifies factors that aid in achieving positive outcomes and proposes new avenues for social technologies to diversify the range of social spaces in community settings.Building upon our on-site fieldwork, our virtual fieldwork investigates remote social activities explored by the same community in response to the impacts of the COVID-19 pandemic. We conducted follow-up interviews with a subset of caregivers and facilitators who participated in our previous study. Then, we reflected on our volunteering and facilitation experience at virtual Tales & Travels. Through thematic analysis on the interview transcripts and reflexive facilitation notes, this work deepens the understanding of virtual social sharing for the dementia community and proposes new avenues for reimagining community social spaces, affirming agency in people with dementia and caregivers, and diversifying HCI support across communities.Critically reflecting on our on-site fieldwork, we re-analyzed our interview transcripts and observation notes, as well as the process of study design, data collection, and data analysis. We examined how we succeeded and failed to capture the perspective of people with dementia while involving proxies (i.e., caregivers and facilitators). Through qualitative content analysis, this work contributes practical approaches to effective inclusion of proxy stakeholders in qualitative HCI work in sensitive settings. We further propose a set of guidelines recommending 1) extended engagement with the community and multifaceted research design in preliminary work, 2) open and flexible research settings, power dynamics management and intervention, and verbal and nonverbal communication in data collection, and 3) awareness of imbalanced voices and triangulation across sources in data analysis.

Electronic reproduction.
Ann Arbor, Mich. :
ProQuest,
2024

Mode of access: World Wide Web

ISBN: 9798380705844Subjects--Topical Terms:

561099
Writing.
Index Terms--Genre/Form:

554714
Electronic books.

Enriching Social Sharing for the Dementia Community : = Technological Opportunities.
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520 $a Dementia affects cognition, behaviour, and physical ability, posing serious challenges for maintaining active social interactions. Community-based activities are well-positioned to leverage the strengths and capacities of people with dementia and support social inclusion. A growing body of human-computer interaction (HCI) research is exploring technological opportunities for social activities at home and care facilities; however, comparatively less work has focused on community settings. This thesis helps fill this critical gap in HCI research on supporting community-based social sharing for people with dementia, both in-person and virtual. Through on-site fieldwork, virtual fieldwork, and methodological self-reflection, this thesis makes empirical contributions to dementia-related HCI research, as well as methodological contributions to HCI research in dementia and broader accessibility settings.Situating our on-site fieldwork in Tales & Travels, a storytelling and socializing program in the Montreal dementia community, we interviewed dyads of people living with early-middle stage dementia and their primary family caregivers, individual caregivers, and Tales & Travels facilitators (librarians and Alzheimer Society coordinators). Concurrently, we observed Tales & Travels sessions. Through thematic analysis on the interview transcripts and observation notes, this work identifies factors that aid in achieving positive outcomes and proposes new avenues for social technologies to diversify the range of social spaces in community settings.Building upon our on-site fieldwork, our virtual fieldwork investigates remote social activities explored by the same community in response to the impacts of the COVID-19 pandemic. We conducted follow-up interviews with a subset of caregivers and facilitators who participated in our previous study. Then, we reflected on our volunteering and facilitation experience at virtual Tales & Travels. Through thematic analysis on the interview transcripts and reflexive facilitation notes, this work deepens the understanding of virtual social sharing for the dementia community and proposes new avenues for reimagining community social spaces, affirming agency in people with dementia and caregivers, and diversifying HCI support across communities.Critically reflecting on our on-site fieldwork, we re-analyzed our interview transcripts and observation notes, as well as the process of study design, data collection, and data analysis. We examined how we succeeded and failed to capture the perspective of people with dementia while involving proxies (i.e., caregivers and facilitators). Through qualitative content analysis, this work contributes practical approaches to effective inclusion of proxy stakeholders in qualitative HCI work in sensitive settings. We further propose a set of guidelines recommending 1) extended engagement with the community and multifaceted research design in preliminary work, 2) open and flexible research settings, power dynamics management and intervention, and verbal and nonverbal communication in data collection, and 3) awareness of imbalanced voices and triangulation across sources in data analysis.
520 $a La demence affecte la cognition, le comportement et les capacites physiques, ce qui pose de serieux problemes pour le maintien d'interactions sociales actives. Les activites communautaires sont bien placees pour tirer parti des forces et des capacites des personnes atteintes de demence et pour favoriser leur inclusion sociale. Alors que la recherche sur l'interaction personne-machine (IPM) explore de plus en plus les possibilites technologiques permettant aux activites sociales de se derouler a domicile et dans les etablissements de soins, les travaux portant sur l'IPM dans les milieux communautaires sont plutot rares. Cette these contribue a combler cette lacune importante de la recherche sur l'IPM en se penchant sur le partage social communautaire, en presentiel et en virtuel, pour les personnes atteintes de demence. Grace a un travail sur place et en virtuel et a l'autoreflexion methodologique, cette these apporte des contributions empiriques et methodologiques a la recherche sur les IPM dans les contextes de demence et d'accessibilite elargie.En situant notre recherche sur le terrain de Contes et voyages, un programme de contes et de socialisation pour la communaute montrealaise de personnes atteintes de demence, nous avons interroge des personnes atteintes de demence au stade intermediaire, des aidants naturels et des animateurs de Contes et voyages (bibliothecaires et coordonnateurs de la Societe Alzheimer). Parallelement, nous avons observe les seances de Contes et voyages. Grace a une analyse thematique de nos notes d'observation et transcriptions d'entrevues, nous avons identifie les facteurs qui aident a obtenir des resultats positifs et proposons de nouvelles voies pour les technologies sociales afin de diversifier l'eventail d'espaces sociaux dans les communautes.Notre recherche virtuelle, qui s'appuie sur notre recherche sur le terrain, porte sur les activites sociales a distance explorees par la meme communaute en reponse a la pandemie de COVID-19. Nous avons mene des entrevues de suivi avec un sous-ensemble d'aidants et d'animateurs ayant participe a notre premiere etude. Nous avons ensuite reflechi a notre experience de benevolat et de facilitation dans le cadre de Contes et voyages. Grace a l'analyse thematique des transcriptions des entrevues et des notes de facilitation reflexives, ce travail approfondit la comprehension du partage social virtuel pour la communaute de personnes atteintes de demence et propose de nouvelles voies pour reinventer les espaces sociaux communautaires, affirmer l'autonomie des personnes atteintes de demence et des aidants naturels, et diversifier le soutien offert via les IPM entre differentes communautes.En reflechissant de facon critique a notre travail sur le terrain, nous avons reanalyse nos transcriptions d'entrevues et nos notes d'observation, ainsi que le processus de conception de l'etude, de collecte des donnees et d'analyse des donnees. Nous avons examine comment nous avons reussi et echoue a capturer la perspective des personnes atteintes de demence tout en impliquant des mandataires (c'est-a-dire des soignants et des facilitateurs). Grace a l'analyse qualitative du contenu, ce travail suggere des approches pratiques pour inclure efficacement des parties prenantes dans le travail qualitatif d'IPM dans des contextes sensibles. Nous proposons egalement un ensemble de lignes directrices recommandant 1) un engagement elargi avec la communaute et une conception de recherche a facettes multiples dans les travaux preliminaires; 2) des milieux de recherche ouverts et flexibles, la gestion de et l'intervention dans les dynamiques de pouvoir, et la communication verbale et non verbale dans la collecte de donnees; et 3) la sensibilisation aux voix desequilibrees et a la triangulation entre les sources dans l'analyse des donnees.
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