國立虎尾科技大學 |

Health Care Transition and Patient-Perceived Quality of Life in Sickle Cell Disease.

紀錄類型:	書目-語言資料,手稿 : Monograph/item
正題名/作者:	Health Care Transition and Patient-Perceived Quality of Life in Sickle Cell Disease./
作者:	Haynes, Karen A.
面頁冊數:	1 online resource (161 pages)
附註:	Source: Dissertation Abstracts International, Volume: 78-07(E), Section: B.
Contained By:	Dissertation Abstracts International78-07B(E).
標題:	Health care management. -
電子資源:	click for full text (PQDT)
ISBN:	9781369654462

Health Care Transition and Patient-Perceived Quality of Life in Sickle Cell Disease.
Haynes, Karen A.

Health Care Transition and Patient-Perceived Quality of Life in Sickle Cell Disease. - 1 online resource (161 pages)

Source: Dissertation Abstracts International, Volume: 78-07(E), Section: B.

Thesis (Ph.D.)

Includes bibliographical references

Because of the high mortality rate of sickle cell disease (SCD) patients who do not continue care into adulthood, researchers have paid increasing attention to the health care transition experiences of SCD patients. However, a gap exists regarding patients' perspectives of care transition related to their quality of life. The purpose of this phenomenological study, guided by the biosocial-ecological systems model, was to explore the lived health care transition experiences of SCD patients in relation to their health-related quality of life. Data collection included open-ended interviews with 12 patients in the Southwestern United States. Colaizzi's (1978) method of phenomenological data analysis was used to identify themes, including resistance to transition; inadequate transitional support; lack of autonomy and education; fear, anxiety, and stress; and managing other life changes. Results contribute to the existing research on SCD health care transition, broaden understanding of the transition process and provide guidance for improving transition programs.

Electronic reproduction.
Ann Arbor, Mich. :
ProQuest,
2018

Mode of access: World Wide Web

ISBN: 9781369654462Subjects--Topical Terms:

1148454
Health care management.
Index Terms--Genre/Form:

554714
Electronic books.

Health Care Transition and Patient-Perceived Quality of Life in Sickle Cell Disease.
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504 $a Includes bibliographical references
520 $a Because of the high mortality rate of sickle cell disease (SCD) patients who do not continue care into adulthood, researchers have paid increasing attention to the health care transition experiences of SCD patients. However, a gap exists regarding patients' perspectives of care transition related to their quality of life. The purpose of this phenomenological study, guided by the biosocial-ecological systems model, was to explore the lived health care transition experiences of SCD patients in relation to their health-related quality of life. Data collection included open-ended interviews with 12 patients in the Southwestern United States. Colaizzi's (1978) method of phenomenological data analysis was used to identify themes, including resistance to transition; inadequate transitional support; lack of autonomy and education; fear, anxiety, and stress; and managing other life changes. Results contribute to the existing research on SCD health care transition, broaden understanding of the transition process and provide guidance for improving transition programs.
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538 $a Mode of access: World Wide Web
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